Awareness

November is National Diabetes Awareness Month!

Happy November 1st peeps! 🙂

Even though I have been a diabetic since 2010, I didn’t become fully aware of National Diabetes Awareness Month until last year, 2021.

For a decade, I shied away from anything that was diabetes related. I didn’t want to associate myself with diabetes, being a diabetic, never told any friends or extended family that I had diabetes and never posted anything on social media about it.

I wanted to live life diabetes free and I truly did live like I wasn’t a diabetic. I rarely if ever checked my blood sugar, I was inconsistent with doctor visits, I was inconsistent with lab work, I was inconsistent with my diabetes care and almost always lied to my immediate family about how my diabetes was going.

I started therapy in the beginning of 2018 but we didn’t get to talking about my diabetes until the beginning of 2020. That is how much I avoided talking about my diabetes.

One of the main reasons I started (reluctantly) talking about my diabetes in therapy was because I had gotten engaged to my now husband. My husband and I met in June 2018 and we went on our first date 3 months later.

(I honestly cannot remember when exactly I told him that I was a diabetic)

I had kept my diabetes diagnosis a dark secret for so long and kept doing my best to ignore it that it wasn’t something that was at the forefront of my mind. Fast forward to mid-November 2019, I was at the endocrinologist office and was told that I might have to go to the Emergency Room because my blood sugar was critically high. I cried to the nurse and said I wanted to do everything possible to avoid going to the Emergency Room and she said she needed to consult with my doctor. I called my boyfriend (my now husband) crying and told him the news. He, luckily, had got off work early so he was able to go to the doctor’s office and meet me.

At that time, we both worked for the same hospital and one of the reasons I didn’t want to go to the ER was because that is where my co-workers and his co-workers worked. I didn’t want my deep dark secret to be exposed/shared with others because it wasn’t something that I had truly been open about with my boyfriend.

After spending a good amount of time at the doctor’s office and after an insulin shot, they felt comfortable letting me go home but urged my boyfriend to take me to the hospital if my sugars rose again.

To this day, I am lucky enough to say that I haven’t needed to be hospitalized but that is not the case for many others who have diabetes.

On December 17, 2019, I was diagnosed with Diabetes Type 1.

On Dec 27, 2019, I got engaged to my now husband.

In therapy, I discovered that I never allowed myself to grieve the life I had lost. The life of a non-diabetic. I never accepted the fact that things had changed or that I needed to accept this new life and learn how to live it.

Diabetes is not an easy diagnosis to live with. If you are managing your diabetes, it requires your 24/7, 365 days/year attention. You’re not allowed to take breaks, you can’t not think about it, and the roller coaster of blood sugar levels can be emotionally and mentally draining.

The fact that I had not managed my diabetes definitely put a strain on my relationship. It put a strain on our relationship because I wasn’t open about it, I didn’t want help with it, I didn’t know how to verbalize what type of support I needed, and I didn’t know how to properly manage my diabetes which caused high blood sugars. When someone experiences high blood sugars, these are the common early symptoms:

  • Frequent urination
  • Increased thirst
  • Blurred vision
  • Feeling weak or unusually tired

And if it goes untreated, you can experience the following symptoms:

  • Fruity-smelling breath
  • Dry mouth
  • Abdominal pain
  • Nausea and vomiting
  • Shortness of breath
  • Confusion
  • Loss of consciousness

https://www.mayoclinic.org/diseases-conditions/hyperglycemia/symptoms-causes/syc-20373631

When I experienced some of the above symptoms, I was not someone you wanted to be around. I managed to hide how I felt at work and not lash out but with my family and boyfriend, it could get ugly. Ugly in the sense that I felt too tired, got easily frustrated, felt like I was in a fog and had no motivation for anything and got angry easily.

Being the older sister and not having any brothers, I felt like I put it upon myself to carry my family if my dad was at work. I was the one who killed the spiders, I was the one who drove my mom and sister around, I was the one who stepped up. Because of this mentality, I never wanted to be a burden for anyone.

Therapy helped my realize that I wasn’t a burden for needing help or wanting help but I could become a burden if I never asked for help and/or support.

Therapy helped me realized that I couldn’t do it alone and if I truly wanted to marry the man I was engaged to and be with him forever, I needed to let him in and see the parts I didn’t want to face by myself. I needed to lean on him, I needed to ask him for support and I needed to be vulnerable with him.

We’ve now been married for 1 year and almost 4 months and I am grateful that I took that leap of faith and shared with him my deep dark secret.

I told him today was National Diabetes Awareness Month and he replied “Happy National Diabetes Awareness Month babe.” For me, that meant the world and it put a big smile on my face.

For anyone struggling, I see you. I’ve been there. You can and will get through this. Lean on your support system and if you don’t have anyone, look to TikTok or Instagram as you can find amazing and supportive people on there that have the same thoughts and fears as you do.

Happy November 1st!

Happy National Diabetes Awareness Month!

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Diabetes Adventures

The Struggle of Eating Out

Last week Friday, I went to dinner with some friends, we met up around 7:30pm. We went to a sushi place, we placed our order, ordered drinks and when I reach for my pump to pre-bolus…..BAM!!! I noticed that I only have 27 units left of insulin! Eeek!

I had ordered one beer and one roll of sushi, an albacore roll. The sushi roll has rice in it so it is going to have carbs and my beer also has carbs. As soon as I saw how many units of insulin I had left, 1,234,834,283,698 thoughts flew through my mind. Yes, us diabetics can have that many thoughts!

Let me give you some insight: For every 1 gram of carb, my pump’s settings are set to give me 4.2 units of insulin (I stick to that carb ratio, 1:4.2, because that is what my body needs) and my background insulin (which basically just means the insulin my pump is giving me 24/7) is 66 units of insulin in 24 hours so that means every 1 hour I am getting 2.75 units of insulin. According to Google, my albacore roll is roughly 57g carbs which means I’ll be using 13.5 units of insulin + I had ordered a beer which is roughly 13g carbs which means I’ll be using 3 units of insulin = 16.5 units of insulin for my dinner (one roll and one beer).

So if I bolus for my dinner this is what it would look like:

27(units of insulin in my pump)-16.5 (units needed to bolus for my dinner) = 10.5 units (of insulin remain).

Let’s say dinner is about 2 hours so 2.75+2.75 (background insulin) = 5.5 units of insulin

So if I only had the one roll, one beer and dinner was 2 hours long that means I would have 5 units of insulin left.

Side note: Everyone’s insulin needs are different so there are people who have a higher ratio and others who have a lower ratio. There is NOTHING wrong with you for having different insulin settings from someone else and you are NOT a bad diabetic, it simply means your body needs more insulin.

Back to my dinner story!

I started thinking that I should have checked my pump before I left the house, I should have brought my supplies to change out my reservoir, I should have brought up a back up insulin pen, I shouldn’t have ordered the roll and should have ordered a salad instead, I should have ordered water and not beer, I should have this, I should have that, I should have, I should have, I should have, why didn’t I? Basically I was beating myself up and felt like a bad diabetic. This has happened to me before so I also thought to myself, “haven’t you learned yet?!” All these thoughts flashed through my mind in a matter of seconds.

I didn’t have an outwardly reaction and I honestly didn’t think any of my friends noticed and I did my best to contain myself because I was at a dinner with friends and there was nothing I could do except maybe excuse myself from dinner and go home but home was also 40 minutes away and it had been a few months since I had seen my friends.

In that moment I made the quick decision to not bolus for anything so that I can still have enough for background insulin to last me the whole night. Was that the best/smartest idea? Who knows! LOL I think that sometimes being a diabetic is similar to having two right answers and needing to chose the best right answer! And sometimes we don’t get that answer right and sometimes we don’t know it until after the fact.

I’ve come a long way with being kinder to myself regarding my diabetes management and putting at ease my thoughts and worries so despite of my insulin situation, I was still able to enjoy myself, enjoy my food, enjoy my beer and enjoy time with friends.

I didn’t check my pump until after dinner and I was holding steady in the 180s but I know that with rice, my blood sugar was going to start rising over the next two hours. After dinner, we felt like we still needed more time to talk/catch up and I didn’t want to leave so I made another decision to stick with the group. We walked to our friend’s house and we stayed there till almost 11:30 pm. Then I drove my friend to her house where my husband was hanging out with her husband and we stayed another hour or so. At this point, I already knew my blood sugars were high and didn’t feel like checking since there was nothing I could have done about it. I was able to stay in the present moment and I had so much fun.

We got home around 1:15am, I checked my blood sugar and it was at 293. I didn’t beat myself up about it, I wasn’t mean to myself and just saw the number matter-of-factly. I proceeded to change my infusion set since I obviously had already run out of insulin and did a correction before going to sleep.

The above scenario, as I briefly mentioned earlier, has happened to me more than once. I think its because I am a baby diabetic and diabetes is not always at the forefront of my mind even though its a huge part of me. It’s always a reminder to myself that I am more than my diabetes and that one night of bad blood sugars doesn’t mean I am a bad diabetic, it’s not enough for me to make me feel badly about myself and definitely not worth losing out on a fun night with my friends.

I do recognize and am aware that I need to be better and do better but then again, I’m only human and no one is perfect 🙂